In December 2010 my son Justin Ibbetson (26) was diagnosed with Hodgkins Lymphoma. Between 2010 and 2012 he did numerous chemotherapy treatments as well as a Stem Cell transplant. All was looking good and he was in remission for over a year. In October 2013 he started getting small tumors. Initially there was one in his groin which they removed and was found to be benign. One month later he developed more tumors in his groin and neck. After removing them and tests were done they were found to be malignant. He was sent for PET scans and bone marrow tests. He was diagnosed with “Recurrent Hodgkins Lymphoma” which is incurable.
His oncologist (Dr. Rapoport) gave him just 8 months in October 2013. He did extensive Chemo (Mime) in December 2013, January 2014 and February 2014 for 3 days per month which only had a 50% success rate and regrettably was unsuccessful. A drug named Brentuximab Vedotin (SGN-35) which was registered in November 2011 in the USA, also registered in the UK and Japan has had a high success rate after clinical trials. This drug was developed specifically for patients like Justin, who have no hope of recovery from Recurrent Hodgkins Lymphoma.
Being that the drug is not registered in South Africa the Medical Aid does not cover these costs.
The price of the medication is €3,333 = R49 871-90 per vial, Carriage & Packaging will be added onto order and will be dependent upon the number of vials ordered.
1 single-use vial = 50 mg of brentuximab vedotin
Justin requires 126mg which = 3 vials per infusion = R149 615-70 which would be given intravenously every 21 days for a max of 16 cycles depending on performance / tolerance for the treatment.
Justin can be booked in as an outpatient at Dr Rapoport’s Rooms and he will do the administration for him.
Justin has always remained positive and tries to live life to the fullest. Justin got married on 15 February 2014 to his Fiance Tracy Ball. She has been his pillar of strength since day one and has never complained about helping him through his ups and downs.
Unfortunately there is no more that can be done for Justin in South Africa and his health is deteriorating day by day – he is in constant pain.
We are in desperate need of getting this drug for Justin to save his life.